Dublin Science Education Programme

About this event

Register your FREE place at the 2022 Science Education Programme

Attend one of our 23 workshops across the UK, to help you make informed decisions, understand more about scientific research of Duchenne and information about treatment options.

We will offer unbiased information in an easy to understand way, which will be accessible for all. It will also be a great opportunity to meet other families in the local area and to meet with the Action Duchenne team.

“Empowers families and gives them the tools & confidence to get to grips with jargon used. Recommended to all families! No previous science or research knowledge required. Suitable for all families!” - Neuromuscular specialist nurse

More information

• 23 locations across the United Kingdom in Summer 2022
• Learn from the experts
• Helping you make important decisions

These sessions are half-day workshops in fully accessible venues, and will delve into the following topics;

• What is Duchenne muscular dystrophy?
• Understanding genetics and mutations
• Diagnosis, symptoms, screening and beyond
• Current treatments and their pros and cons
• Management of Duchenne and where to find help (respiratory, cardiac, orthopaedic, endocrinological, gastrointestinal and urological)
• Support for families and helpful resources

Engaging, informal, free workshop, covering important topics about Duchenne muscular dystrophy for parents, caregivers and professionals.

About this event

Register your FREE place at the 2022 Science Education Programme

Attend one of our 23 workshops across the UK, to help you make informed decisions, understand more about scientific research of Duchenne and information about treatment options.

We will offer unbiased information in an easy to understand way, which will be accessible for all. It will also be a great opportunity to meet other families in the local area and to meet with the Action Duchenne team.

“Empowers families and gives them the tools & confidence to get to grips with jargon used. Recommended to all families! No previous science or research knowledge required. Suitable for all families!” - Neuromuscular specialist nurse

More information

• 23 locations across the United Kingdom in Summer 2022
• Learn from the experts
• Helping you make important decisions

These sessions are half-day workshops in fully accessible venues, and will delve into the following topics;

• What is Duchenne muscular dystrophy?
• Understanding genetics and mutations
• Diagnosis, symptoms, screening and beyond
• Current treatments and their pros and cons
• Management of Duchenne and where to find help (respiratory, cardiac, orthopaedic, endocrinological, gastrointestinal and urological)
• Support for families and helpful resources

Who will benefit from attending?

• Duchenne parents and carers
• Adults living with Duchenne and their PA teams
• Duchenne family members i.e. Grandparents, adult siblings, extended family who want to get a greater understanding of the condition
• School staff (SENCo, Teaching Assistants, Teachers, Inclusion team)
• Healthcare professionals
• Neuromuscular teams

Workshop timings

• 10:00 tea, coffee and a warm welcome
• 10:30 workshop starts
• 12:30 lunch
• 13:00 afternoon session starts
• 14:45 tea, coffee and a chance to chat
• 15:00 farewell and thank you